About Genome Compare

Introduction

This activity takes the data that you have uploaded to the Open Humans project and compares the calls looking for discrepancies between the sequences.

Genome sequencing has a degree of inherent inaccuracy in the results, simply because of the massive number of base pairs in a human genome. As it becomes more common for individuals to have genomic data from multiple sources, it is now possible to compare the data and look for disagreements.

How does it work?

Once you authorize the project, the system will automatically retrieve your data from the Open Humans site. You will be sent a message with a web site address that you can use to monitor the progress of your request and retrieve the final results.

Will you have access to my identity?

No. Our access to your genetic data and ability to send messages will be through a random identifier. This facilitates our protection of your privacy.

Will you share my private data?

Genetic data analysis will be done privately, and your individual genetic data will be kept private.

The developers may examine reports or raw data to debug errors that occur during processing or to refine the accuracy of the software. We may also use the data in aggregate to try and determine if there are any system errors in various sequencing pipelines so that we can flag them in future reports.

Can I remove my data from Genome Compare?

You can deauthorize the project at any time on Open Humans. If you deauthorize the project, we will no longer have access to your genetic data on Open Humans. We will also no longer be able to send you messages through Open Humans.

The end report will remain on the web site, however only you will know the secret URL to access it. If you would like it removed altogether, contact us directly and we will delete the file.

Security and privacy risks

There is a small risk of privacy loss through this activity.

Your genetic data will be kept private and managed securely. In addition, to protect your privacy, we will not have your identity associated with your genetic data.

However, it is possible an unauthorized individual will gain access to your data. In addition it may theoretically be possible for someone to determine your identity from the genetic data, even though we will not have your identity recorded. We believe the risk of this occurring to be quite low.

Contact information

Please contact the Developer (James Turner) if you have any questions about this activity and your part in it, if you believe you have had a research-related harmful event, or if you have any general questions, concerns, or complaints about this research.

• James Turner (email): turner@blackbear.biz

Join the activity

By selecting "Accept" on this form, I agree to the following statements:

• I want to share my data with this activity.
• I have read this form. I have had a chance to ask questions, and my questions have been answered to my satisfaction.
• I am at least 18 years of age, and that any genetic data I share with this activity through Open Humans is my own data.